Monday, September 9, 2013
9/9/13
Top of the evening to ya! I hope all has been well with you since I last blogged! It's funny how time gets away from you - especially when you're having fun! I can't really think of anything really exciting that we've done since being home, but I definitely haven't been letting the grass grow underneath me! Gemmie and I have been super busy helping mom with laundry - you know like me clotheslining Bot with the washer and dryer doors, emptying our dressers and closets as soon as mom looks away, and the occasional meltdown!
Aside from laundry, there's office work, house work, you name it, but mom and dad have found time to play with us - momma took us to the park today and oh my, was that fun!
Before we hit the park, I had to have another radiograph of my chest to check for effusion and some harpooning to check my blood! Both went rather well, everyone was very gentle and good at their job - kudos ladies! Unofficially, my chest X-ray was clear and my labs looked swell - COULD I GET A HECK YEAH?! I'm going to see Dr. Pope tomorrow for an examination and the official results, but as far as I know, all is well? I believe there will be another followup later this week but am not for sure as to the tests that they will run? I wouldn't be surprised if they repeat the ray with a subsequent stick.
I'm doing great except for my sleeping schedule. I have to make several pit stops during the night and have a little anxiety in regards to the dark on occasion. I woke the whole dang house up this morning a little before 6am - rooster should've been crowing anyways, right?!
Alright, I better get some zzz's before I gotta pee, need a drink, light check, monster extermination, socks repositioned, blanket tucked just right, etc! You all take care and thank you again so much for your thoughts and prayers - they work.
I love each and everyone of you.
Cheers,
Bean
Thursday, September 5, 2013
September 5, 2013 - THE BEST THURSDAY EVER.
Grrrrrrrrrrrrrrrreetings blog readers, from Hays, Kansas! Prayers
have been answered, and we got home around 3 pm! As you can already
guess, I had a good night, obviously! Granted, I summoned for water and
pit stops on a couple of occasions but we're used to that by now! My
O2 sats held throughout the night without any supplemental O2, the x-ray
was clear this morning, and my lab #'s were on the money!
After
me and the fam talked yesterday about how ready we were to leave, it
was kind of unsettling when we stepped back and looked at the
situation! We had been all but ready to leave on a couple of occasions
in the preceding month, but had encountered a couple of hiccups. Glad
we got the hiccups there and not after we arrived home, which is where
the unsettling part comes in - OMG, are we really ready to go home?!
The easy, obvious answer is HECK YES, but what if............?! A wise
man once said you can spend your whole life worrying about the what
if's, live for the moment.
They'd been saying all along about
how they'd have us outta there by 10am if we were in fact dismissed and
danged if the train wasn't running early! Don't know too many
incidences of early that go on in a ginormous joint like that, but I
wasn't complaining! Next it was off to the Donho to pack the rest of
our belongings and give her a scrub before checking out. Gemmie and I
hammered down some mid morning snacks before hitting the road. By 11am
we were west bound and down. We had a layover in Topeka with some lunch
to go before napping the rest of the way home!
Never, ever had I been so excited to see Bosco - and man was he glad to see us! After we had unpacked the family truckster, it was time to fire up the barbie. For the past two or three days, I had repeatedly asked the rents to grill us some steaks, with shaw shaws (Gemmie lingo for french fries), salad, and ice cream for a meal. We had the best meal ever, mostly because it was at home with my family - no nurses, care assistants, doctors, etc! We could've eaten a stale sandwich of expired lunchmeat and moldy cheese and it still would've been the best meal ever, just cause we were home!
As Dorothy said, "There's no place like home!" I hope you all are well, I love you, and I will continue to keep you updated! I have a chest x-ray and labs next Monday and Friday here in good old Hays, America! Gotta get my rest, so I can roughhouse with Gemmie and Bosco! Peace, out, Beanie
Wednesday, September 4, 2013
9/4/13
Celebrate, it's hump day! I had a great one! Last night was great, my tests went great, and my day was great! The docs rounded mid morning and said that everything was...well, great - I'd probably be released on Friday! I know they sensed the anger and sadness in all our eyes, so after they'd reconvened outside, they came in and said that if everything looked satisfactory tomorrow morning - we could go tomorrow! We all expressed how we understood and appreciated everything they were doing for us but we wanted to go home in the world's worst way! However, if we needed to stay - we needed to stay, we understood? They switched my remaining lasix med over to the oral version today so it will all just depend on how the night goes and what the tests show in the morning!
We did get a day pass to go to the park! I don't know who was more excited, Gemma or me - at least we got to blow the stink off! I can't wait to go home and see Bosco and roughhouse with Gemmie on our own turf! Our bathrooms, our beds, and mom says - our germs (she's moderately-severely germaphobic, but shhhhh - keep that on the DL)! Don't get me wrong, this is a wonderful place, but I'm ready to wind down this chapter of my life!
I don't know what else to say? I appreciate your continued thoughts and prayers even if I am dismissed this week, because I still have some recovering to do! God and everyone knows once I leave, I only want to come back for check ups - inpatient is for the birds! Tomorrow night I'd like to be home watching the Ravens beat, I mean play, the Donkeys, I mean Broncos - WOW, I really need to go to bed, I played harder than I thought today! XOXO, Bean.
Tuesday, September 3, 2013
September 3, 2013
Good day, peeps! I hope your first day back to work treated you well! Mine went very well, thank you very much!
I found myself peeing throughout the night with never ending thirst and losing track of that dang binky - at least one of the above every couple hours. I call upon my butler and he helps me work through these "situations"! The night nurse was a ninja vampire - she snuck in under the radar, doped me with lasix, and stole some blood without me even knowing! My chest X-ray continues to look even better, lets pray that continues now that I'm extubated! Oh yeah, as I was throwing back some pickles at lunch, they came in and got her yanked! Dads on my poop list for constraining me and helping rip tape and flesh offa me, while my my nurturing mommy consoled me! I don't know what us girls would do without that lady?
They're also changing one of my two lasix meds to the oral version today. If my lab values continue to hold then we'll switch the other one tomorrow. Most likely that means they'll observe me throughout tomorrow if everything goes as planned. As long as no problems or setbacks arise, I pray to God I get discharged on Thursday. It's all just going to depend on the following X-rays, lab values, and I'm sure an echocardiogram. PRAY FOR CLARITY AND STABILITY ON MY TESTS; PRETTY, PRETTY, PRETTY PLEASE - at this point I'll do just about anything to get outa this place!
I had a great day being unchained from that stinking tube, it sucked - in every aspect! Us girls went shopping at the gift shop today cause, well, we're girls and we like to shop! Gemmie and I found the cutest little dolls we just couldn't live without! Dad knows that it's been hard on all of us, especially me and Gemmie, so he and mom bought us some babies! I'm pretty sure next year we won't take a month's vacation and it won't be to CMH...hopefully!
That's all I really know from KCMO. You all have sweet dreams and don't let the bed bugs bite, love, Kaylee
Monday, September 2, 2013
Labor Day '13 (9/2)
What up blog dogs? Hope everyone is ready to tackle the 4 day week! I know I am - all in all I had a productive holiday weekend without having to labor much at all! I had another great night besides having to pee and needing to wet my whistle occasionally - my little kidneys gotta be smokin with all this lasix! My X-ray, labs, and tube output were all stellar again this morning!
I hesitate to blog this but if you're gonna hang em, hang em high I always say! If all goes well tonight and with my tests in the morning, it's bye, bye chest tube! If this is the case, they're planning on switching my lasix to the oral version and watching me for a day - just to make sure that I handle the transition ok and the fluid doesn't come back. All goes well, and it's hello, Hays! If the fluid starts to come back, I'll have a Blake drain installed and then be sent home at some point.
I'm not getting my hopes up, who the heck am I kidding - it's December 23rd in my world! We've been this close on a couple of occasions here lately, so disappointment I understand but everything happens for a reason! Lets pray that the tube does in fact come out in the mañana and the fluid does not reaccumulate! The tweaking of the meds I can live with, but this all kinda goes hand in hand.
I feel like a broken record, blogging the same old story day after day! Bot, mom, dad, and I have explored about every square inch of this hospital that they will let us and we've even set off an alarm or two trying to access areas we're not supposed to. We're a little bored but we're making the best of it - today was family planking day at CMH! Get some rest, you gotta go to work in the morning! I love you all, I'm out, Beanie
Sunday, September 1, 2013
9/1/13
Never did I think I'd still be here in September!
Good news, I had vascular put in a new IV yesterday that pushes and pulls like a dream - no tourniquet required! That made me rest a little easier last night knowing there wouldn't be a stick this morning! Having all that fluid off, I satted in the low to mid 90's w/out any supplemental O2. Mom suggested to dad that we pray for a clearer chest film today and I'll be danged, it was MUCH clearer! That lady is not only pretty, but witty! I believe that I drained about 60mL's off during the night shift and today has been even less...so far! Lets just keep our fingers crossed that it's because there's not much fluid left to drain and my body's adapting to my new physiology! At this point, all we can do is be patient...and pray.
We are adding another lasix today that I could possibly go home on, if it works. They're wanting to keep my blood a little dry in general, that way if there is any fluid that starts to accumulate around the lungs again, hopefully, my blood will carry it off! We'll see how I tolerate it by checking my lab #'s and monitoring the tube output as well as my daily chest film. I just hope I don't glow after all this radiation!
I would hope that by the middle of this week, we are going to have an idea of when we might return home. If not, then mom's gonna have to wash us up some more drawers - any bets on how many times Gemmie will lock them outta the room next go around? Lets hope to heck we don't have to fight that round! I figure that if the drainage remains slowed, X-rays look clear, and my meds are adjusted correctly, the tube will get yanked and we could get our walking papers shortly thereafter. On the other hand, if the drainage continues but everything else is good, then I'll undergo another procedure to change out this tube for one I can go home with, then we'll go home. Absolute worst case scenario, this stupid tube stops draining, X-rays cloud, then we either gotta nurse this tube along, again, or change it out so we can leave! I'll run this by mom as momma hit the nail on the head last night, but I think we should pray for continued, diminished tube output, continued clear X-rays, continued high O2 sats, stable lab values, and increasing energy as I need to play off a little steam with Gemma! I know she misses me oh so much, and I would like nothing more than to go to the park with her! Well, I take that back, we all want nothing more than to spend the night together as a family...at home preferably! This is the only time I've ever stayed away from my mommy or Bot and it's starting to weigh on us all...ALOT!
I'll be back tomorrow, but you all had better have had a ginormous Sunday funday! Football season, dove season, no work tomorrow! If anyone needs to get a hold of me, I'll be here! I love and pray for you all as I appreciate everyone "scratching my back" as well! Until the next time, Go Chiefs, Heart, Bean
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